We have decided to create this space to share information and news about ALS, our center and be closer to our community
With a new year ahead, we have decided to start this new blog space for all of our community to access relevant ALS information but also, to share with you news about our clinic.
In this first post you will find our mission statement for 2021.
We are making it our mission to remove the label "untreatable" from ALS.
ALS is a disease that is considered untreatable, and once you hear that something is untreatable that becomes a self-fulfilling prophecy.
We know that not all treatments are effective for all individuals. But if you are suffering from ALS, FIND treatment. Whether it is a source of vitamins, a traditional treatment, or a nontraditional treatment. Look around, interview, and find something that feels right for you. 48 reversals have been proven, and there is nothing that would make those people unique by comparison to you if you have ALS and you are reading this.
Out of everybody that was treated at the NurOwn trial, perhaps it’s true that only 34% got better, but out of everybody that wasn’t treated 27% did. So the power of the mind is very important and the reason we want to start sharing successes is not to debate what the measure of success is, and not to debate one treatment against another, our mission is to get more and more information out there about the fact that there are treatment options and to explore them because the more than people with this disease understands that there are treatments options the more they essentially move into the placebo group of believing that if they can get better they will get better, and out of those people more than 1 in 4 actually can.
As a company, and a group of people that care very strongly for individuals that have ALS, and we have made our life passion to help these people, we would like to ask everybody to come out of the shadow and remove the languaging of untreatable. The more people with this disease understand that there are treatment options the more they essentially move into the placebo group of believing that if they can get better they will get better, and out of those people, more than 1 in 4 actually can.
If everyone continues the traditional approach where successes or failures are kept secret, it is less likely that people will figure out treatments that can help them get better. So moving forward our mission is to create a community with other practitioners, individuals with this disease, and their family members that feel the same way and want to bring this disease to the light and STOP CALLING IT UNTREATABLE just because it is the label that it has. Because whether you are someone who thinks it is untreatable or not, one thing is true: the more that label persists the fewer people are going to be willing to look for treatment and there is no reason to put a stigma on disease and limit science, medicine, family members and individuals with the disease from seeking additional knowledge.
Even if this disease may have been untreatable, there has never been a time where technology, not just in medicine, has advanced so fast in such a short period of time. If we can remove this from the shadow that it lives in of being untreatable and just make it neutral, perhaps given the new technology and treatments that are coming through research, we can turn the tide.
As a company, and a group of people that care very strongly for individuals that have ALS, and we have made our life passion to help these people, we would like to ask everybody to come out of the shadow and remove the label of untreatable.
We saw the NurOwn findings and were blown away by how impressive a placebo effect can be when it comes to getting yourself better in the face of disease. Because of this, we realize we are doing a disservice by not sharing hope and letting people know when we have our successes. We are asking that anybody that has success, whether it is a center, an individual practitioner, people with ALS, or friends and family members, please publish it as often as possible. Let's start bringing these stories to LIGHT.